I am going into Emily's class later to tell them about having ME and to make Princess crowns with them. I had so many plans and things I would love to do with them, but in reality I'll probably just bore them and look stupid. I am not dressed as a Princess today, my dress is too heavy and awkward to wear again let alone go into school and do messy activities. The dress I wore on Sunday for the Princess photos is my wedding dress, I have always dreamed of wearing it again and feeling so special, but in reality it was very hard work getting ready and walking around and I didn't get that special feeling I had dreamed of. I did have ME when we got married 14 years ago next month and it had to be factored into the day and the wedding plans, but I am sure I wouldn't be able to do it again now, but it's also amazing what adrenaline and determination can do.
I have lots of ideas of how to use the photos and have made up some to share, but it will take weeks to do the others as I need help with them and the energy and concentration required for the task.
We did enjoy dressing as Princesses, Emily was so excited and you can see from the pictures she loved it and was definitely the star of the show.
I am paying the price today for my enthusiasm and efforts and just when I wanted to be my best I have had to get Rob to take Emily to school and he has to come and help me at school later as despite all my ideas I can't do much more than turn up and hope everyone else has fun. This is the sad reality of ME and the price my family have to pay too. Rob has a full time job and Emily is trying to deal with growing up, school and the loss of her pet hamster (a big deal when you are 8).
Please follow the days events on Princess for ME, there is an auction later, some of my bracelets and cards are in it. Also visit ME organisations such as Action for ME, ME association, AYME or google ME and see what comes up!
There is a lot of ME activity on Facebook and Twitter today, so please show your support if you use these sites. I am Jane E M Shaw on Facebook. I don't understand Twitter and don't need any other distractions!
Well here are some of my pictures, I hope you will keep following me and the pictures as I create them. I have a lot more to say and share, but ME is not willing and I don't want to miss this afternoon through pushing even harder. The pictures are not in any particular order, please make sure yo go to the bottom for the ones that are captioned.
Thank to all those who have supported me and donated, there is still chance Just Giving