Question Time- Question 1

I have been asking a few questions on some of the ME forums I belong to and have got some interesting answers and advice.

Question 1
Anyone else find it hard to read and understand and take in written information? I have been trying to read stuff about behaviour issues and other such things and it just doesn't seem to go in. I have a Masters degree and spent many years studying and researching so this shouldn't be hard. I like reading and read novels which I enjoy at the time, but can't remember much about it once I have finished. I find it really hard to follow recipes, written instructions and patterns and get really stressed with them, so fed up of what this illness robs us of.

I am finding it hard to read information, I have been trying to research behavioural issues that Emily displays and also things to try and improve my own mood, but I don't seem to take in the information.  I do read novels, but can't really remember what I have read and can't read anything that is too complicated.  I struggle to follow recipes and patterns which makes my pleasurable activities difficult.  If we have a new game to play I have to ask someone else to read the rules and then try and explain them to me.  Emily likes to change rules once she is used to the game, which is quite creative, but confuses me too much. I have a post graduate degree so was always used to reading and gathering information so I find this quite distressing.  When people have sent me information they think that I am not taking it seriously as I don't always read it, or if I do I can understand what it is telling me to do.  At the moment I am trying to work through a book with Emily What to do when your temper flares.  It is a book aimed at children and I am just about keeping up.  I have also been trying to read Wisdom of groundhog day, which does seem a good book, but I have only got half way and now it feels to much of a chore to carry on with it.  Finally I got 80% of way through Words that work, again an interesting book, but I can't remember the techniques and as it is usually a stressful situation when they are needed my mind goes blank.

If I am trying to follow a recipe or pattern I really struggle, partly because I am trying to multi task by reading the instructions and doing the activity, so many of things I try become too stressful when they should be a pleasure and I get really upset at not being able to do something that is really quite simple.

Some people suggested audio books, but with my hearing issues listening is very hard work and I only hear parts of speech.  I use subtitles when watching TV and can't watch anything that doesn't have subtitles and even then if there is too much going on I can;t follow the programme.  It is frustrating as these things are what most people do to relax.

As I now know many fellow sufferers have issues with reading, I will try and make my posts a reasonable length so will post the other question separately.

Shocking read

I have just finished reading A Mother's Ordeal about the one child policy in China and one person's true experience.  It is a shocking read, but gripping all the same.  I first read the book just over 15 years ago and unlike most books it stuck in my mind.  Not even being able to remember what it was called as it was a library book I searched for it and found a second hand copy online and bought it.  So I have just finished reading it again, it is still shocking and the time period of the book is during my childhood, early adult years, so not back in the dark ages as it seems.  Being a mother myself now means I can understand the emotions more, especially as I too have a different sort of imposed one child.

Written by Steven Mosher the true story of Chi An is written from her perspective.  I am no good at writing book reviews but found a couple of links to other reviews here and here.  I wish I knew what happened after the end of the book as the story was not over and I assume that Chi An and her family are still alive.

Feeling Lazy

Feeling rather lazy as spent a big chunk of time reading Life and Times of Call the Midwife an accompaniment to the tv series.  Its is very interesting with information about the making of the programme and about the 1950's.  I have read it in just 2 days thanks to having a poor nights sleep.

Feeling very tired today, but have been to an appointment that was very wearing and placed online shopping order, but still feel I have not done enough and have so many things I want to do.  I was going to try starting the waistcoat, but am too tired to work it out, maybe tomorrow.........  Have to leave some energy for baking for school fair tomorrow night and for sorting out my hearing aids!  Just the thought of all the things is tiring let alone doing them.